Does anybody here have it? Does anybody *not* have it but they were mis-diagnosed? One doctor says I have it, then they said it's possible I don't. The g.i. doctor doesn't think I have it but wants endo to know for sure. Is it worth getting the endo if I'm already eating g.f. the best I can? (If anyone sees a guy drinking water or sprite at the bar, that would be me.)
celiac disease
Started by phxpeelsessions, Jan 03 2012 08:15 PM
4 replies to this topic
#2
Big Jilm
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Posted 03 January 2012 - 11:35 PM
My mother has Celiac. I'm not sure that eating g.f. "the best you can" is quite good enough if you have the disease. You've got to be extremely vigilant about reading ingredients and asking what goes into restaurant foods. Gluten will pop up in unexpected places, like cheap soy sauce. FWIW Picazzo's Pizza (Phx area) has a pretty tasty g.f. pizza crust. There are some g.f. pretzels in the 'health' food section at Fry's that are pretty tasty. I send a couple bags to my mom every once in a while. There are g.f. beers out there as well....
#3
hexaclopsclopsclops
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Posted 04 January 2012 - 07:11 PM
Does anybody here have it? Does anybody *not* have it but they were mis-diagnosed? One doctor says I have it, then they said it's possible I don't. The g.i. doctor doesn't think I have it but wants endo to know for sure. Is it worth getting the endo if I'm already eating g.f. the best I can? (If anyone sees a guy drinking water or sprite at the bar, that would be me.)
I'm no expert on this by any means, but you could simply try removing all wheat from your diet for several weeks and see if you feel better. This means you'd have to make all your own food so you can be sure there's no wheat sneaking in there (like Big Jilm said, you never know where it can sneak in). It takes at least two weeks for food-born irritants to get out of your system, so if you really want to be sure, go three weeks or more and keep a diary of how you feel every day so you can keep track. This probably doesn't sound very practical, but it's preferable to having your doctor charge you an arm and a leg to knock you out and run a roto-rooter up your dink.
#4
Vacuum Tube Antimatter
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Posted 05 January 2012 - 02:07 PM
Does anybody here have it? Does anybody *not* have it but they were mis-diagnosed? One doctor says I have it, then they said it's possible I don't. The g.i. doctor doesn't think I have it but wants endo to know for sure. Is it worth getting the endo if I'm already eating g.f. the best I can? (If anyone sees a guy drinking water or sprite at the bar, that would be me.)
I'm no expert on this by any means, but you could simply try removing all wheat from your diet for several weeks and see if you feel better. This means you'd have to make all your own food so you can be sure there's no wheat sneaking in there (like Big Jilm said, you never know where it can sneak in). It takes at least two weeks for food-born irritants to get out of your system, so if you really want to be sure, go three weeks or more and keep a diary of how you feel every day so you can keep track. This probably doesn't sound very practical, but it's preferable to having your doctor charge you an arm and a leg to knock you out and run a roto-rooter up your dink.
I heard you will do it for free!
#5
fatguyaz
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Posted 13 January 2012 - 08:55 AM
my oldest daughter has it. It's a BITCH!
She got scoped to be sure. That's really the only way they can tell for sure, because the little hairs in your intestines get destroyed by gluten if you have it and they don't if you don't. It's the only sure way to tell for what i was told by our doc. It was through the mouth, not your butt. PLUS! That was a 45 minute ordeal, and insurance covered it. Gluten is in a whole shit load of stuff... it's a bummer.
She got scoped to be sure. That's really the only way they can tell for sure, because the little hairs in your intestines get destroyed by gluten if you have it and they don't if you don't. It's the only sure way to tell for what i was told by our doc. It was through the mouth, not your butt. PLUS! That was a 45 minute ordeal, and insurance covered it. Gluten is in a whole shit load of stuff... it's a bummer.
I still don't have a signature.
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